These videos tell our stories. Please share them with your family and friends. We need to find a cure for Giant Axonal Neuropathy, save lives, and keep families together.
We are a parent, family and friend driven organization dedicated to finding a treatment and a cure for Giant Axonal Neuropathy. We are funding research, raising awareness, and facilitating communication to stop this ravaging disease. However, we need help from people like you. Friends, family and total strangers. Let your legacy be curing a disease. Beautiful and innocent people are counting on you.
Hannah's Hope for G.A.N. is a 501c3 public charity,
our EIN is 45-0593226 and your donations are tax deductible.
The Hannah's Hope Golf Tournament on Tuesday, September 9th will be at the Edison Club, 518-399-2393.
$1
Million Dollar
shoot out!
One shot is all it will take for you to go home with $1,000,000 in your golf bag!
Closest to the pin on the longest Par 3 on each nine qualifies for the shootout.
Raffle ticketsfor the two remaining slots in the ShootOut will be sold during the tournament. The two winners will be drawn at the conclusion of regular tournament play, and the 5 qualifying golfers will proceed to the 18th hole for the ShootOut as our gallery of golfers gathers to cheer them on. Contestants will tee their shot from 165 yards. If you make a hole-in-one, you win $1,000,000!
Inquire about sponsoring this event!
4-yr-old Hannah Same sof Rexford, ny was recently diagnosed with Giant Axonal Neuropathy, an extremely rare genetic disorder that causes progressive, irreversible damage to nerve cells, and is known to be fatal.HANNAH’S HOPEFUNDis a parent, family and friend driven organization dedicated to finding a treatment and a cure for Giant Axonal Neuropathy. Hannah’s Hope Fund is funding research, raising awareness, and facilitating communication to stop this ravaging disease. However, we need help from people like you -- friends, family and total strangers. Let your legacy be curing a disease. Beautiful and innocent people are counting on you.
Schedule
l 11:30 am: Registration & BBQ Lunch
l 1:00 pm: Shotgun
l 6-7 pm: Cocktails & Silent Auction
l 7-9 pm: Dinner & Live Auction
Format
l 4-player scramble
l Each player must use 2 tee shots
l 2-putt maximum on each green (for speed of play)